By Chris Sharry on August 5th, 2025 in Disability, Disability Eligibility
As with any medical condition, qualifying for disability depends on the severity of the diagnosis and how it impacts the ability to perform full-time work activity. Although there is no SSA listing, cases with ehlers danlos should be compared to listings involving cardiovascular problems, musculoskeletal issues, gastrointestinal issues and skin disorders. SSR 14-1 for chronic fatigue syndrome should also be reviewed.
What is Ehlers Danlos Syndrome?
Ehlers-Danlos syndrome is a diverse connective tissue condition that has thirteen different subtypes. This group of genetic connective tissue conditions is commonly characterized by unstable, hypermobile joints, loose, “stretchy” skin, and fragile tissues. However, some subtypes, such as Vascular Ehlers-Danlos and Kyphoscoliotic Ehlers-Danlos, are prone to life-threatening arterial dissections and ruptures.
Common features across most EDS types include:
- Joint Hypermobility: Joints have an unusually wide range of motion, often described as loose or unstable. This can lead to frequent dislocations and subluxations (partial dislocations).
- Skin Hyperextensibility: The skin is abnormally stretchy and returns to its original position slowly after being pulled.
- Tissue Fragility: Tissues are easily damaged and may bruise or tear easily, and wounds can heal slowly or leave abnormal scars.
Symptoms
Each type of Ehlers-Danlos syndrome has its own symptoms, but the most common EDS symptoms include:
- Overly flexible (hypermobile) joints — it might feel like your joints are loose or unstable.
- Soft skin that’s thinner and stretches more than it should.
- Bruising easily or more often than usual.
- Unusual scarring or taking unusually long to heal after a cut or small wound.
- Joint and muscle pain.
- Fatigue (feeling tired all the time).
- Difficulty concentrating.
Ehlers-Danlos Syndrome (EDS) itself is not specifically listed as a condition that automatically qualifies for Social Security Disability benefits. However, individuals with EDS can still be approved for benefits if they can demonstrate that their condition limits their ability to work. This is often achieved by proving that their EDS-related limitations are equivalent to those of a listed impairment, or by demonstrating a “medical-vocational allowance”.
Unfortunately, there is not a specific listing for Ehlers-Danlos Syndrome. Rather, you can meet a listing for another medical condition that you have due to the syndrome. Below are some of the possible rules that may be met by those with EDS.
- Listing 1.18 – Abnormality of a major joint in any extremity
- Listing 2.02 or 2.04- Vision Loss
- Listing 4.10 – Aneurysm of the aorta
- Listing 5.02 – Gastrointestinal bleeding requiring a blood transfusion
Navigating Disability Claims with EDS
Proving disability with Ehlers-Danlos Syndrome can be complex due to the lack of a specific SSA listing and the wide range of symptoms associated with different subtypes. However, individuals who can document how their condition limits daily functioning and prevents full-time employment may still qualify through comparable listings or a medical-vocational allowance. Success often depends on detailed medical records, physician support, and a clear demonstration of how the condition disrupts normal activities. If you are considering applying for Social Security Disability benefits due to EDS or a related condition, Attorney Chris Sharry can help guide you through the process. Contact our office today to schedule a case evaluation.
